update on Mik

I spent most of the day with Mik yesterday, I was too tired last night to write anything, all I wanted was my dinner and bed.
Burnt offerings seem to be the order of the day just recently - I've found two new ways of cooking rice, one way is burnt but it is a nice nutty flavour and is not bad when disguised with lotsa of veggies in a fried rice special., the other is chewy rice, caught just before it sticks to the bottom of the pan and can be disguised with a sauce. But we eat it and nobody notices.
Mik was comfortable yesterday, a bit disorientated - ants on the ceiling. I found out just how high those electric beds can go, he insisted on raising it up as high as he could so he could get the ants, the only problems was that the social worker and I were at either side, so we ended up on tiptoe trying to talk over the bed that was at our chin level. Mik refused to hand over the control and the look on the nurses face when she walked in with a bowl to give him a bed bath was priceless.
He's getting more and more confused and found it harder to drink through a straw, he got so frustrated when he couldn't feel it on his lip. Liam was there last night and he phoned me to see if it was alright to let Mik go on a drip. He didn't recognise ryan yesterday afternoon and ryan was so heartbroken. But as we were leaving he suddenly saw him there and gave him the biggest hug and said he loved him and he was super hero. Ryan cried all the way home, which started me off and we pulled off the road and we sat and watched the most amazing sunset over the mountain range. It was surreal, but peaceful and calming being bathed in the glow of it all.
Matt stayed by him all night again last night. It seems funny when Matty was born he was a preemie, the nurses used to tell me that Mik would sneak in in all his work clothes and just sit by the humidicrib holding Matts tiny little hand and talking to him. Mik never told me this and I don't think he ever knew that the nurses had told me. Now it is in reverse and Matt sits by his bed, holding his hand, talking to him and getting him the things he needs. Mik has really lucid moments early in the morning so Matt gets to get him at his best. I am not resentful, I feel that this is what Matt needs.
I am changing my mind sligthly about the funeral, we can have the chapel for two hours, flowers and music but no service. I am beginning to think we need this so will talk to Tom and sushi.

JanJan